Making Cancer Registries more relevant and valuable in the light of Government 2.0 and Public Intelligence
Government 2.0 initiatives are changing the attitude of governments, public institutions, and research organizations about how they provide access to data. There is a growing expectation that these data sources should be easier to access and more widely available as a resource. This brings challenges and opportunities to the data owners or data service providers. As a data service provider, the challenge becomes how to optimize the value of the data from disease and immunisation registries while managing the risks and costs of the service delivery.
Space-Time Research has been engaging with the Gov2.0 taskforce as it sets out the agenda for the use of public sector information and online engagement. Our paper, submitted in response to the Taskforce, Towards Government 2.0: an Issues Paper, talks about the role that technology can play in opening data while retaining confidentiality, and the importance of using data as the basis for informed debate. This is relevant for Cancer Registries because as more public sector information becomes available online, the potential for researchers to mash up datasets to assist in their research increases. Also, this creates fundamental expectations in the way people find, create, and share information.
Maximizing the use of Cancer Registry data
Cancer Registries around the world are focused on how they, and the research community, can get the most value from their Cancer Registry data.
Cancer Statistics can:
- relay and reinforce important prevention messages to the public
- form a shared resource for other researchers and epidemiologists
- increase the referenceability of the data.
Find out more about how technology can make Cancer Registries more accessible and valuable resources by visiting the Cancer Cancer Victoria case study.
Time trends by cancer chart.
For this report you can select the rate (incidence or mortality), sex, population standard, time period, and which types of cancer you want visualized.
Cancer map.
For this report you can select which cancer, rate (incidence or mortality), sex, and period average.
Find out more about how the Victorian Cancer Registry moved from traditional methods of data dissemination to the self-service Cancer Statistics website. This includes the ability to provide information as Aged Standardized Rate to six different populations, immediately increasing the use of the data to a broader set of researchers who before had to rely on those rates published in tables from the Victorian Cancer Registry.
Underlying technology - SuperVIEW
The SuperVIEW product of the SuperSTAR suite embeds into your website to provide a tool for interactive visualization of Cancer Registry data. Users can engage with a number of different views of the data, providing access to information about cancer incidence by all levels of the community. SuperVIEW is designed according to Representational State Transfer (REST) principles and uses all the current Google Web 2.0 Technology. This makes the SuperVIEW perform like a desktop application. It is a highly scalable tool that forms a platform for your registry data, as well as other survey and statistical data from within your organization.
Web2.0 sharing and collaboration
Population pyramid
Relevant and valuable
As not-for-profit organizations compete for a share of the public attention, how you communicate to the community becomes more important in promoting your relevance. The viability of any population-based registry is dependent on it meeting the requirements of the community it serves. These community requirements demand self-service access to data, and the ability to ask any question using online tools.
Space-Time Research software products are constantly evolving to stay at the forefront of this public intelligence wave and ensure that our customers are able to make the most of the Web 2.0 opportunity. Space-Time Research helps Cancer Registry data remain a relevant and valuable resource by making it easier to access, easier to understand, and more engaging to interact with.
Space-Time Research recognizes that while Cancer Registries share some common challenges and opportunities through the emergence of Gov 2.0 and Web 2.0 technologies, each Cancer Registry is a different organization. We would like to talk with you about how you see the opportunities for leveraging more value from your Cancer Registry data - please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it .